Quarterly Meeting Update and Open House

I’ve had several people ask about the upcoming meeting. I can’t announce the speaker yet, but we have the usual large conference room at the Tenley/Friendship Library reserved for Sunday, December 14th at 1:00 pm.  So mark your calendars – I’m sure you’ll want to keep the afternoon clear if you can.  I’m really excited about the speaker, and I hope to make the announcement later this week.
 
I also wanted to bring your attention to the PhysioFitness Open House this Sunday, October 26th at 5:30 pm.
 
At our last meeting, Dr. Michelle Layton spoke about her group’s new facility.  Many of you indicated that you were interested in attending the open house.  In addition to Dr. Layton, Jan Dommerholt practices at this facility. He is very highly recommended as an EDS specialist in PT.  From what I’ve gathered, PhysioFitness is aiming to cater specifically toward EDS patients and are utilizing unique, individualized approaches toward physical therapy. I will do my best to be there, and it may be of use to those of you who are looking in to PT or are willing and/or interested in trying something new.

You can view information about the event and RSVP here: http://www.evite.com/event/03F2DNHMGMS3XQOAEEPEJZS7RETJII/

As always, if you have any questions please feel free to comment or send an email.

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Summer Meeting Details!

The DC Metropolitan Area EDS Support Group will be holding a Summer Meeting: 

 
When:  Sunday, August 3rd, 1:00-4:00 PM
 
Where:  The Tenley-Friendship Library
              4450 Wisconsin Avenue NW
              Washington, DC  20016
              Large Conference Room – 2nd Floor
 
              Metro Stop:  Tenleytown-AU
 
 
The primary topic will be Acute & Chronic Pain Management for EDS through Orthopedic Physical Therapy (anyone who may have/has suffered with issues focused on the muscular and skeletal systems).   
We will also have a general group discussion.
 
We hope you will be able to attend as we would like to welcome special guest speaker:
 

Michelle Layton
PT, DPT, OCS, MTC, CMTPT, FAAOMPT
Doctor of Physical Therapy
Board Certified Clinical Specialist in Orthopedics
Certified Manual Therapist
Certified Manual Trigger Point Therapist/Dry Needling
Fellow, American Academy of Orthopedic Manual Physical Therapists

Dr. Layton is part of the Bethesda Physiocare team.  In addition to general physical therapy, Bethesda Physiocare sees people with acute and chronic pain, myofascial pain, orofacial (TMJ/headaches) pain, orthopedic injuries, pelvic pain/dysfunction and issues of continence.  Their practice is highly regarded and one of the primary PT facilities in the DC Metro area who work with EDSers.  They understand and treat people with EDS who suffer from acute and chronic pain issues.  Michelle has taken an interest in EDS after training with Dr. Jan Dommerholt.   Michelle is highly skilled in all areas of Musculoskeletal Dysfunction.  She works with the entire spine and all areas of the body.  Additionally, she has an interest in treating the head, neck, face, temporomandibular joint (TMJ), cervical spine, and shoulder girdle.  
 
Dr. Layton realizes as with all patients, and those of us with EDS particularly, that while we may have some similarities, we may also have very individualized specific treatment needs.  She is a problem solver and works hard at taking the time to assess each person and developing individualized treatment plans depending upon what type of therapy works best for them.  Her goal is to return patients to their highest level of function.  She has a great deal of experience, is a good listener and a compassionate person.  With all of this said, Michelle has had good results in treating some with EDS through her various individualized methods so we thought it would be a fine opportunity to invite and welcome her to speak at our support group meeting.  
 
Even if you currently have a PT you work with,  the meeting is still a good opportunity to possibly learn how to better manage acute and/or chronic pain issues relating to EDS from another skilled and qualified PT.  In addition to her talk, Michelle is happy to answer any questions you may have as well.
 
Additionally, time permitting, after our speaker and Q&A, we will also have an informal open group discussion and afford the opportunity to those of you who may want to participate or have any questions relating to the many complexities of EDS and the host of other multi-system issues that can accompany the syndrome for some.  Depending on the size of the group, we may have one group discussion or break into a couple groups and have open discussion on a topic or two thatsome of you have mentioned you would like to have addressed.
 
It’s going to be a very informative and enjoyable meeting so we hope you can join us!  If you did not already reply on the DC Metro EDS Group that you will be attending, you can do so below on this thread here, or you can RSVP at DCMetroEDS@gmail.com .   If you would like further information or have any questions at all, please also address those to the email address provided.  The group is open for all EDSers and any friends, family, caregivers, etc.,  who would like and are able to attend!  
 
We are looking forward to seeing you and hope you can make the meeting onAugust 3rd!  It’s a great opportunity to attend so we can support, share, and learn from each other.
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See Dr. Pocinki Speak! Quarterly Meeting Details

It’s time for the quarterly meeting of the DC Metro Area Support Group!

When:
Saturday, March 1, 2014

Time (NEW TIME):
11:00am – 2:00pm

Place:
**LARGE** Conference Room (Upstairs)
Tenleytown Library
4450 Wisconsin Ave. N.W.
Washington, DC 20016

RSVP:
http://www.signupgenius.com/go/10C0848ADAC28A4F58-quarterly

We are extremely lucky to have a special guest speaker for this meeting: Dr. Alan Pocinki! Many of us have him as our doctor, but this is a great chance for all of us to hear him speak and have an opportunity to ask him questions in a relaxed setting.

This meeting occurs at a new time in the LARGE conference room. When you come up the stairs (or the elevator), the large room is in the middle of the library with double glass doors.

In order to attend this meeting you must RSVP. There is only a limited amount of seats in this room, so let me know ASAP if you want to come because we cannot go over capacity.

If you have any questions or suggestions, please let me know. I hope to see more new faces at this meeting!

Thanks,
Angel

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